it's only when you know how many people have taken the treatment in total that the numbers represent anything more than sadness. I can quite see how a procedure whether addressing venous or immunological issues) that's tailored to the individual is likely going to be less risky than one designed for the majority. My Tysabri boat apparently sailed four years ago and i chose to be Sclafani'd seven weeks ago but without useful numbers and percentages none of us can reach conclusions about treatment choices. I resented having to trust that i'd made the right choice a few weeks back. i think the lack of meaningful ccsvi research is just as shocking as half presented tysabri numbers. I believe we need openness and honesty across the board.
For me I find the 4% chance of catching something worse than I already have sounds more alarming than a fraction of a whole number... (0.something and i start to switch off and i feel 0.0something will never happen to me).
We can get statistics to say whatever we like.
One of the statistics that people are really good at ignoring is the chances of winning the lottery - 1:14,000,000 when we compare this to the 4% chance of getting something it a bit brings it into starker focus for me, at least.
One of the statistics that people are really good at ignoring is the chances of winning the lottery - 1:14,000,000 when we compare this to the 4% chance of getting something it a bit brings it into starker focus for me, at least.
crowdfunding for ccsvi research? http://en.wikipedia.org/wiki/Crowd_funding
I'm 'super excited & pumped' (doesn't sound at all right coming from a britisher's lips but I'm starting to quite like it after hearing it on US wellness/exercise blogs) about the announcement of the UK govt's wellbeing measure. It sounds like it could be hopeful when trying to point out to healthcare practitioners that there are many ways to gauge a 'successful outcome'.
i'm not sure what the measurement was for disease modifying drugs to class them as worthy of prescribing across the MS population - oh that's right they were only designed for RRMS (people whose MS naturally goes in and out of a state where they have more, less or no symptoms - http://www.mstrust.org.uk/atoz/types.jsp quite a comfortable disease profile to test on?
I'm finding it pretty tricky to not become a bitter old conspiracy theorist as it's turned out, over the years that big bad pharma really ARE. I think there's link up on an earlier post to GSKs actions for which they appear to factor in having $3billion in the petty cash tin to cover any fines for questionable marketing behaviour.
I find it quite comical that our prime minister http://www.number10.gov.uk/ can get away with saying he didn't believe a news editor was involved in any wrongdoing in the Milly Dowler type cases at the News of the World for which the government set up its own investigation into suspect behaviours. http://www.telegraph.co.uk/news/uknews/phone-hacking/9422408/Phone-hacking-Andy-Coulson-and-Rebekah-Brooks-charged.html The Leveson Enquiry anyway, i'm staggering away from the point I had (that i very much hope i haven't lost in this heat http://www.weather.com/weather/right-now/52.205337,0.121817?cm_ven=Googlemaps&cm_cat=googleOneBox&cm_pla=application-us&cm_ite=today
yes, i know 81f is seriously unworthy of mention to most folks in the US.
I'm drifting, people with MS here in the UK are considered to be vulnerable adults, folk for whom the wool is easily pulled over the eyes of and yet our prime minister can get away with saying he's a rubbish judge of character and didn't think the person he chose to employ as leader of the party's pr dept. (grasping for a better word) would do illegal things?
The more i find out about David Cameron PM the more i really don't like the sound of him.
We're only talking cursory websearches and listening to the news not FOI requests http://en.wikipedia.org/wiki/Freedom_of_Information_Act_2000, http://www.dailymail.co.uk/news/article-1191155/Claims-David-Cameron-30m-fortune-sit-uneasily-taxpayers-So-truth-money.html. He comes from generations of financiers/taxacrobats and yet feels justified to point the finger at a comic's tax affairs on his own, earned income?
All these actions are 'totally legal' (As soon as you have to point out an action's legality you kind of know that action is morally questionable).
The thing i think stops a lot of people's contentment is the feeling that there's one rule for some and another for others. it could be argued that being governed by a number of Old Etonians rather nurtures that feeling.
it strikes me that MSers are more aware of questionable characters because there are so many from prime ministers through to faith healers passing drug companies along the way that try to pull wool and i think, as a consequence we're quite wise to them. We're not fatalistic and seeing the worth in any given situation we're just more aware that not every business is fluffy and has the wellbeing of the individual in mind. http://www.guardian.co.uk/lifeandstyle/2012/jul/24/national-wellbeing-index-annual-results?newsfeed=true
I'm looking forward to the appointing of a wellbeing czar.
it may perhaps be a trite thing to say but perhaps folk who've been dealt not the best hand are the perhaps the people to be consulted over happiness quotas - those who have mastered their own internal wellbeing?
apologies for the meandering nature of this blog post its shape goes some way to representing my scattergun brtain in this heat where i can start off somewhere and pass through somewhere else entirely although this post has a number of issues which have been interesting me in the past few days and if you don't look too hard they sort of all fit under the statistic title.
hapiness is, after all, all about the numbers!
I'm 'super excited & pumped' (doesn't sound at all right coming from a britisher's lips but I'm starting to quite like it after hearing it on US wellness/exercise blogs) about the announcement of the UK govt's wellbeing measure. It sounds like it could be hopeful when trying to point out to healthcare practitioners that there are many ways to gauge a 'successful outcome'.
i'm not sure what the measurement was for disease modifying drugs to class them as worthy of prescribing across the MS population - oh that's right they were only designed for RRMS (people whose MS naturally goes in and out of a state where they have more, less or no symptoms - http://www.mstrust.org.uk/atoz/types.jsp quite a comfortable disease profile to test on?
I'm finding it pretty tricky to not become a bitter old conspiracy theorist as it's turned out, over the years that big bad pharma really ARE. I think there's link up on an earlier post to GSKs actions for which they appear to factor in having $3billion in the petty cash tin to cover any fines for questionable marketing behaviour.
I find it quite comical that our prime minister http://www.number10.gov.uk/ can get away with saying he didn't believe a news editor was involved in any wrongdoing in the Milly Dowler type cases at the News of the World for which the government set up its own investigation into suspect behaviours. http://www.telegraph.co.uk/news/uknews/phone-hacking/9422408/Phone-hacking-Andy-Coulson-and-Rebekah-Brooks-charged.html The Leveson Enquiry anyway, i'm staggering away from the point I had (that i very much hope i haven't lost in this heat http://www.weather.com/weather/right-now/52.205337,0.121817?cm_ven=Googlemaps&cm_cat=googleOneBox&cm_pla=application-us&cm_ite=today
yes, i know 81f is seriously unworthy of mention to most folks in the US.
I'm drifting, people with MS here in the UK are considered to be vulnerable adults, folk for whom the wool is easily pulled over the eyes of and yet our prime minister can get away with saying he's a rubbish judge of character and didn't think the person he chose to employ as leader of the party's pr dept. (grasping for a better word) would do illegal things?
The more i find out about David Cameron PM the more i really don't like the sound of him.
We're only talking cursory websearches and listening to the news not FOI requests http://en.wikipedia.org/wiki/Freedom_of_Information_Act_2000, http://www.dailymail.co.uk/news/article-1191155/Claims-David-Cameron-30m-fortune-sit-uneasily-taxpayers-So-truth-money.html. He comes from generations of financiers/taxacrobats and yet feels justified to point the finger at a comic's tax affairs on his own, earned income?
All these actions are 'totally legal' (As soon as you have to point out an action's legality you kind of know that action is morally questionable).
The thing i think stops a lot of people's contentment is the feeling that there's one rule for some and another for others. it could be argued that being governed by a number of Old Etonians rather nurtures that feeling.
it strikes me that MSers are more aware of questionable characters because there are so many from prime ministers through to faith healers passing drug companies along the way that try to pull wool and i think, as a consequence we're quite wise to them. We're not fatalistic and seeing the worth in any given situation we're just more aware that not every business is fluffy and has the wellbeing of the individual in mind. http://www.guardian.co.uk/lifeandstyle/2012/jul/24/national-wellbeing-index-annual-results?newsfeed=true
I'm looking forward to the appointing of a wellbeing czar.
it may perhaps be a trite thing to say but perhaps folk who've been dealt not the best hand are the perhaps the people to be consulted over happiness quotas - those who have mastered their own internal wellbeing?
apologies for the meandering nature of this blog post its shape goes some way to representing my scattergun brtain in this heat where i can start off somewhere and pass through somewhere else entirely although this post has a number of issues which have been interesting me in the past few days and if you don't look too hard they sort of all fit under the statistic title.
hapiness is, after all, all about the numbers!
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