i think the mismatch between people who have and don't have ms is where there's going to be disagreement over whether venoplasty has any worth for those with an ms diagnosis...
what training do medical professionals get to gain a bit of understanding into what they're chronic conditioned patients face on a day to day basis (i think that's probably a bit of a rhetorical question).
If i were an expectant mother i'd feel a little uneasy receiving care from a childless midwife... she's READ about the pain but she hasn't FELT it.
There will always be a gulf of unshared experience between a neurological patient and their neurologist.
What would we (as ms patients) consider a ccsvi procedure having 'worked' to mean?
You know it won't be the same as someone who doesn't have MS.
From the outside I don't walk any better, i hold on to walls a little less but still need them and a stick when outside + I was looking at an MS colleague's wife's wheelchair http://www.trekinetic.com with some sort of crippled lust!
I sweat (I'd stopped about 6 years ago) not necessarily a great outcome to someone who doesn't have heat intolerance!
i can type with a slightly less predictable stream of typos from my dragging fingers.
my right foot doesn't drag and cause me to trip on uneven paving stones or kick out at the ankle as much when going upstairs.
We need to consider our definition of success.
i can contemplate doing more than one thing a day (sometimes ms symptoms can really sound like laziness to me and i get them - no wonder the general public are relatively clueless about ms).
I'm glad i seem to have a relatively benign form.
after speaking to my ex heart patient neighbour who looked after our cat while i went for venoplasty to temporarily widen my malformed jugular and azygus valves I started to see angioplasty for angina as having similar qualities to venoplasty for MS (let's leave aside for the moment the many and varied hypotheses for MS's aetiology. Truth is MS docs still don't know so probably there's more than one and so a treatment that deals with ccsvi won't address ALL cases of ms.
Angioplasty doesn't stop heart attacks (unless you're in the middle of one) and subsequently,
there are some questions over the efficacy of performing an elective angioplasty.
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