This image illustrates to me the number of unknowns we have to deal with as an ms patient should we choose to employ a bit of selfcare instead of relatively ineffective DMDs. Please see here for some of the background to the DMD claim.
NICE draft guideline released this april is an update on their last 2003 guidelines for treatment of MS.
I've looked through the paper and there are a couple of things that I'd appreciate further info on:
'check for a range of not necessarily neurological things b4 giving ms diagnosis'
This is a good thing especially a vitB12 check but then later on vitD3's not recommended as a treatment option?
When will healthy caregivers get into their heads that being chronically ill you're happy to have a go at a range of things that might make life a little better?
There are no big wins or cures so we need to address everything just because a marginal, cumulative effect isn't easily measurable doesn't mean it shouldn't be bothered with.
I sleep on a slope which, after having a week sleeping on the level I believe I can fairly safely say seems to cut down on the pins and needles and other signs of generally poor circulation.
The guidelines are written from a well person's perspective but if in our day to day functioning, life cansometimes feel a bit miserable on a fairly regular basis then we're pretty heavily invested in achieving even imperceptable bonuses. looking into aspects of magnesium deficiency which we're likely to be deficient in (dark green leafy veg preferably grown in soil that hasn't been depleted of all it's 'dirt'y good stuff.
If I had many followers I'd ask them to check out another site I'm setting up. In it I'm looking at alternatives for chronic conditions. I do hope you'll join me in finding out some stuff that might be of use and marvel at the images taken from my archive of the last few years. There's even a film of me on the page entreating us to explore to reduce the unexplained.
hope to see you over there soon
